23andMe



http://23andme.com23andMe23andMe aims to make and support scientific discoveries and publish those discoveries in scientific journals. We invite you to take part in this project, which we call 23andMe Research. To get started you must agree to the terms in our full consent document (below).Unlimited1,500,000(1) Your genetic data and any other personal information you enter into the website, except for your Registration Information (name, contact information, and credit card information), may be analyzed in the research. (2) Your name and contact information may be used to communicate with you but are not analyzed in combination with your genetic and other personal information.(1) 23andMe's privacy statement outlines who does and does not get access to the personal information of 23andMe customers; here we list the additional individuals who will get access if you consent to take part in research. (2) Within 23andMe: 23andMe researchers who conduct analyses will have access to your genetic and other personal information, but not to your name, contact, or credit card information. 23andMe researchers who contact you will have access to names and contact information, but only to very limited genetic or other personal information. (3) Outside of 23andMe: 23andMe may share some data with external research partners and in scientific publications. These data will be summarized across enough customers to minimize the chance that your personal information will be exposed. 23andMe may need to share the information with other agencies as required by law.Your Genetic & Self-Reported Information may be used to discover links between genetic markers, non-genetic markers, traits, diseases, behaviors and other characteristics; to study human migrations and population history; or to assess how people respond to personal genetic information. Discoveries made as a result of this research could be used to understand the basic causes of disease, develop drugs or other treatments and/or preventive measures, or predict a person's risk of disease. The topics to be studied span a wide range of traits and conditions, from common to rare. The topics include simple traits such as hair color or freckles, serious diseases such as Parkinson's disease or diabetes, and less serious conditions such as migraine headaches or response to over-the-counter drugs. Some of these studies may be sponsored by or conducted on behalf of third parties, such as non-profit foundations, academic institutions or pharmaceutical companies. This study may cover potentially sensitive topics such as sexual orientation, illicit drug use or other illegal behavior, or HIV/AIDS status. When 23andMe conducts studies on such sensitive topics, you will be provided additional information to help you decide whether you want to participate in research on these topics.Yes, subjects can download the raw genetic data and share it freely.There are some potential risks to participating in the 23andMe Research study, as described: (1) Some survey questions or data comparisons may make you or your family members uncomfortable; (2) Your genetic data, survey responses, and/or personally identifying information may be stolen in the event of a security breach. In the event of such a breach, if your data are associated with your identity, they may be made public or released to insurance companies, which could have a negative effect on your ability to obtain insurance coverage. In addition, if you or a family member has genetic data linked to your name or your family member's name in a public database, someone who has access to your 23andMe genetic data might be able to link that data to your name or your family member's name through the publicly available genetic data. Although 23andMe cannot provide a 100% guarantee that your data will be safe, 23andMe has strong policies and procedures in place to minimize the possibility of a breach; (3) When 23andMe researchers publish results from this ongoing study, they may include your Genetic & Self-Reported Information but only as part of a summary across enough people to minimize the chance that your personal information will be exposed. Identification of your individual-level data from those summaries would be extremely difficult, but it is possible that a third party that has obtained some of your genetic data could compare that partial data to the published results and infer some of your other personal information; (4) As with any online service, if you disclose your account password to others, they may be able to access your account and your Genetic & Self-Reported Information; (5) There may be additional risks to participation that are currently unforeseeable. None of the surveys or other procedures used by the researchers in the 23andMe Research study is invasive or experimental. The procedures involved do not involve more than the minimal risks described above, and no compensation or treatment is available if injury occurs as a result of participation.One of 23andMe's missions is to make meaningful scientific contributions by enabling its customers to participate directly in genetic research. If 23andMe publishes study results in peer-reviewed journals, there may be an indirect benefit to you as scientific knowledge increases and/or new drugs or tests are developed. You may also have the opportunity to acquire one or more of the following, in return for some level of participation in the research: (1) Comparison of your personal survey responses to those of all responders, additional information about genetics, genetic research or the 23andMe study, and/or preliminary research findings; (2) There may be additional benefits to participation that are currently unforeseeable. Based on the results of this study, 23andMe may develop intellectual property, including but not limited to patents, copyrights and trademarks, and/or 23andMe may commercialize products or services, directly or indirectly. In such cases you will not receive any compensation.CAUSA