Ancestry.com



AncestryDNA MyHeritagehttp://dna.ancestry.com/Ancestry.comThe Ancestry Human Diversity Project collects, preserves and analyzes genealogical pedigrees, historical records, surveys, family health data, medical and health records, genetic information, and other information (collectively, "Information") from people all around the world in order to conduct research studies to better understand, among other things, human evolution and migration, population genetics, population health issues, ethnographic diversity and boundaries, genealogy, and the history of our species ("The Project"). Researchers hope that the Project will be an invaluable tool for a wide range of scholars interested in genealogy, anthropology, evolution, languages, cultures, medicine, and other topics and that the Project may benefit future generations.Unlimited1,500,000The Project will collect Information (as defined above) consisting of genealogical, genetic, and health information. "Genealogical information" is your pedigree, ethnicity, family history, and other information about you and your family that you provide, gleaned from documents and information on Ancestry.com's family of websites and other locations, or is otherwise publicly available. "Genetic information" is your genotype that is discovered when AncestryDNA processes your saliva, is otherwise provided by you, or is gathered by us with your consent. Genetic information is in your DNA, and it is what makes you different from everyone else. DNA controls things like the color of your hair or eyes and might make you more likely to get certain diseases or affect whether a drug helps you and/or gives you side effects. "Health information" is health-related information provided by you (if you choose to use the AncestryHealth tools and agree by accepting the Informed Consent) such as responses to our family health questionnaire(s), medical conditions, diseases, personal traits, and other information, medical records and electronic health records you either upload or provide consent for our gathering; documents on Ancestry.com’s family of websites and other locations; and/or information available via publicly available documents. Each time an individual study is undertaken with a third party researcher or anytime the results of the Project or an individual study are to be published, Information that traditionally permits identification of specific individuals, such as names and birth dates, is removed from the Information. This is done to minimize the possibility that any individual participant can be identified from the Information by any researcher or other individual.For each study that involves a third party researcher, Information about you (minus any information that traditionally permits identification of specific individuals, such as names and birth dates) will be combined with information about others (minus any information that traditionally permits identification of specific individuals, such as names and birth dates). In addition, whenever the results of the Project or an individual study are to be published, only data minus information that traditionally permits identification of specific individuals, such as names and birth dates, will be available or published. Discoveries made as a result of this Project could be used in the study of genealogy, anthropology, population genetics, population health issues, cultures, medicine (for example, to identify drug response, health risks, etc.), and other topics.Your saliva sample will be sent to a lab in the United States. Your sample will not be labeled with your name or other directly identifying information. Your sample will have a code instead. The list that matches the code with your name and information will be stored separately from your sample. Your sample will be kept indefinitely unless you ask the researchers to destroy it.Your test results may reveal information about you or your biological family (blood relatives), but there are no physical risks for providing a saliva sample and having your sample and Information used in this Project. While the Information that may be shared (through publication or with another entity) in the context of each of the studies under this Project will not contain information that traditionally permits identification of you, such as your name and birth date, people may develop ways in the future that would allow someone to re-engineer the otherwise de-identified data. We do and will continue to work hard to ensure that this does not happen. There may also be additional risks to participation that are currently unforeseeable. Please note that if you are in the United States of America, a federal law called the Genetic Information Non-Discrimination Act (GINA) generally makes it illegal for health insurance companies, group health plans, and most employers to discriminate against you based on your genetic information. Be aware that this new law does not protect you against genetic discrimination by companies that sell life insurance, disability insurance, or long-term care insurance and does not guarantee privacy.Information obtained from this research will be stored electronically in the United States. We use a range of physical, technical, and administrative procedures to protect the privacy of the Information. For example, we restrict access to our data center and databases by using industry standard protocols, such as passwords and pass cards, encrypted Internet connections to the AncestryDNA website, and all AncestryDNA Internet computer servers have firewall protections in place. As Information is shared between and among us, it will be protected by encryption. Additionally, when we collaborate with external third parties as part of the Project, these parties will only have access to pooled information from which information that traditionally permits identification of specific individuals, such as names and birth dates, has been removed. We will never purposely release Information along with direct identifiers (such as your name, birth date, phone number, and the like) without asking for and receiving your explicit authorization to do so, except as required by law, and your identity will not be disclosed by us in any publication of the Project without your permission. The Information used in the Project will be segregated from other information and only specifically authorized individuals will have access to this Information. Be aware that records including Information (such as health and other Information as described above) will be shared and copied as needed for the Project.Participating in this Project will not benefit you directly. This Project is intended to assist us and other researchers to better understand the human species, so the more Information contributed to the Project, the better the potential results could be. It is not anticipated that any of the Project results will have significance to any individual participant, and Research Project results will not be communicated by AncestryDNA to you or any physician, regardless of whether you participate in the Project.You will be responsible for the cost of having your DNA analyzed by sending in a saliva sample, just like you would be if you decide not to participate in the Project. There is no financial cost to you for allowing the information from this analysis to be used in the Project. All we ask is that you have your DNA analyzed and agree to have your Information used for the Project; this will take the same amount of time and effort as having your DNA analyzed by AncestryDNA and not participating in the Project.You will not get paid for being in this Project. The sample(s) you share with us for this Project might benefit researchers and others in the future. We will own the results of the Project and any subsequent publication of the results. If any commercial product is developed as a result of the Project, there will be no financial benefit to you.Participation in this Project is purely voluntary. You can decide not to be in this Project and, at any time, you may choose to withdraw some or all of the Information you provided by sending a request to consent@ancestryDNA.com. There will be no penalty to you, and you will continue to be able to use our websites and services as before. We will cease using the Information you provided for the Project and any future studies promptly after receipt of your request. Due to the removal of information that traditionally permits identification of you, such as your name and birth date, any research using the Information that has already begun, studies that have been performed completely, and any study results or findings that have been published prior to this date cannot be reversed, undone, or withdrawn.https://dna.ancestry.com/legal/informedConsentUSA