Risks and Discomforts



Not includedBlood draw; General risk in allowing access to hospital medical records; Genetic research results may possibly lead to health or life insurance discrimination as well as job or social discrimination; Psychological discomfort (questionnaire).Emotional (questionnaire); Physical (blood draw); Future risks: a. Loss of privacy. Small chance of accidental release. Federal Genetic Information Nondiscrimination Act (GINA) prohibits employers and insurers from discrimination; b. Risks related to test results. If valuable information, BTOG and CAB will decide whether to release to participants and how to best release. Learning results may lead to emotional upset, changes in family relationships, insurance or job discrimination. May need to meet with Mayo health care professional to learn test results..General Template: Potential loss of privacy; Risk that information about taking part in a genetic study may influence insurance companies and/or employers; Risk that participation may have a negative impact on family members; Specific Studies: Risks if additional blood draws, biopsies, or other procedures.Blood draw; Risk of tracing de-identified information in scientific database back to individual since ‘genetic information is unique to you’ and that this risk may grow as new ways of tracing information are developed; Risk of tracing de-identified information in scientific database back to individual since ‘genetic information is unique to you’ and that this risk may grow as new ways of tracing information are developed.Blood draw; Risk of loss of privacy or confidentiality.